Your privacy on the National Referral Support Service

Our privacy policy

NHS Midlands and Lancashire Commissioning Support Unit (We, Our, Us and all similar references) are committed to protecting and respecting your privacy.

This policy sets out the basis on which any personal data We collect from you, or that you provide to Us, will be processed by us. Please read the following carefully to understand how we look after your personal data when you access this site and tell you about your privacy rights and how the law protects you.

We are NHS Midlands and Lancashire Commissioning Support Unit. Our registered address is Bennett House, NHS Midlands and Lancashire, 2nd Floor East, Town Road, Hanley, Stoke on Trent, ST1 2QB.

You can contact us by post at the above address (Attention to Digital Innovation Unit) or by email at mlcsu.digitalinnovations@nhs.net

Any enquiries about our use of your personal data should be addressed to our Data Protection Officer using the above address or email mlcsu.ig@nhs.net

What data do we collect?

Vast majority of this site contains public information. However, if you are a patient (or carer) on the national CYP Gender waiting list, you can use this site to update your contact details or to advise that you would like to leave the waiting list. The following information is collected from you to fulfil your request:

Personal Data

  • Date of Birth
  • Current / Previous postcode
  • Current / Previous Surname
  • Email address
  • New legal name
  • NHS Number
  • Carer / Parent Mobile number
  • Home Address
  • GP Practice

When you access the site, you are the data subject (or the guardian of the data subject) who supplies the information necessary for your use of the system.

How we use your Personal Data

We will use your personal data only when the law allows us to. Most commonly, we will use your personal data in the following ways:

  • To enable you, as a user (or carer), identify you to facilitate your request
  • To enable the NHS Arden & GEM Children and Young People’s Gender National Referral Support Service (CYP-GNRSS) on behalf of NHS England to contact you to verify your requirements

What do we do with your information?

The information you provide is directed to the CYP-GNRSS electronic referral management system and NOT stored by MLCSU. The data collected will then be made available to CYP-GNRSS for them to contact you to action your requirement. We will not share your data with any non-related third parties. Your data will not be sent or stored outside of the UK. Nor will they use the information to make any automated decisions that might affect you.

Unfortunately, the transmission of information via the internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to the electronic referral management system; any transmission is at your own risk. Once CYP-GNRSS have received your information, they will use strict procedures and security features to try to prevent unauthorised access.

If NHS Midlands and Lancashire CSU (MLCSU) or its assets are acquired by a third party or transferred to a third-party, then personal data held by it about its registered users will be one of the transferred assets.

MLCSU will comply with any legal obligation to share personal data, or to protect the rights, property, or safety of MLCSU, our registered users and customers. This includes exchanging information with other companies and organisations for the purposes of fraud protection and credit risk reduction and to aid the prevention of cybercrime.

We may use cookies or browser storage to temporarily store information on your device. This information will be used to secure your login session, remember the application state, and to cache data when the device is without an Internet connection.

Data Retention

Not applicable as we (MLCSU) do not store your data.

Your rights (any requests are to be made via agem.cyp-gnrss@nhs.net)

  • Request access to your personal data (commonly known as a "data subject access request"). This enables you to receive a copy of the personal data we hold about you and to check that we are lawfully processing it.
  • Request correction of the personal data that we hold about you. This enables you to have any incomplete or inaccurate data we hold about you corrected, though we may need to verify the accuracy of the new data you provide to us.
  • Request erasure of your personal data. This enables you to ask us to delete or remove personal data where there is no good reason for us continuing to process it. You also have the right to ask us to delete or remove your personal data where you have successfully exercised your right to object to processing (see below), where we may have processed your information unlawfully or where we are required to erase your personal data to comply with local law. Note, however, that we may not always be able to comply with your request of erasure for specific legal reasons which will be notified to you, if applicable, at the time of your request.
  • Object to processing of your personal data where we are relying on a legitimate interest (or those of a third party) and there is something about your situation which makes you want to object to processing on this ground as you feel it impacts on your fundamental rights and freedoms. You also have the right to object where we are processing your personal data for direct marketing purposes. In some cases, we may demonstrate that we have compelling legitimate grounds to process your information which override your rights and freedoms.
  • Request restriction of processing of your personal data. This enables you to ask us to suspend the processing of your personal data in the following scenarios:
    • if you want us to establish the data's accuracy
    • where our use of the data is unlawful, but you do not want us to erase it
    • where you need us to hold the data even if we no longer require it as you need it to establish, exercise or defend legal claims
    • you have objected to our use of your data, but we need to verify whether we have overriding legitimate grounds to use it.
  • Request the transfer of your personal data to you or to a third party. We will provide to you, or a third party you have chosen, your personal data in a structured, commonly used, machine-readable format. Note that this right only applies to automated information which you initially provided consent for us to use or where we used the information to perform a contract with you.
  • Withdraw consent at any time where we are relying on consent to process your personal data. However, this will not affect the lawfulness of any processing carried out before you withdraw your consent. If you withdraw your consent, we may not be able to provide certain products or services to you. We will advise you if this is the case at the time you withdraw your consent.

Changes to Privacy Policy

We aim to keep our privacy policy under regular review.

Any changes We may make to our privacy policy in the future will be posted on this page. The new terms may be displayed on-screen, and you will be required to read and accept them to continue your use of this Site.

Your right to complain

If you have a complaint about our use of your information, you can contact the Information Commissioner's Office via their website at www.ico.org/concerns or write to them at:

Information Commissioner’s Office
Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF

By using this Site I confirm that I have read the Privacy Notice above, and I consent to MLCSU processing my personal data and sharing it with NHS Arden & GEM Children and Young People’s Gender National Referral Support Service.

Page last reviewed: March 2025

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